WHO Declares Rare Diseases a Global Health Priority

Member States today adopted a landmark resolution declaring rare diseases a global health priority in an effort to ensure that no patients are left behind. The Resolution recognizes that over 300 million people globally live with one of more than 7000 rare diseases, most of which begin in childhood and can lead to significant physical, emotional, and financial hardship. The Resolution urges countries to integrate rare diseases into national health planning, improve diagnosis and care through universal health coverage, promote inclusive policies, and accelerate innovation, research, and access to affordable treatment. Importantly, the Resolution mandates WHO to develop a comprehensive 10-year global action plan on rare diseases, with measurable targets to guide progress toward equity, inclusion, and access to care for all affected individuals.